Sunday 19 February 2012
Hard to explain to someone who has no clue. It's a daily struggle being in pain or feeling sick on the inside while you look fine on the outside. Please put this as your status for at least 1 hour if you or someone you know has an invisible illness (PTSD, Anxiety, Bipolar, Depression,Crohn's Disease, Diabetes, LUPUS, Fibromyalgia,TM, MS, ME, HS, Chronic Fatigue, Arthritis, Celiac, Cancer, Heart Disease, Epilepsy, Autism,M.D. Scarcoidosis, etc.) " Never judge what you don't understand.
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16 comments:
Very good point. I think everyone could use a bit more understanding.
A lot of people just need a good bitch-slap.
Might you be one of them, bird?
Amen.........
Even though I'm pulling away from Multiply for a while, I guess this is remarkably timed for me. So, maybe I'll post it.
*hugs*
I hear this, take coping and cherish the happy days and hours as they come
I'd add "Stiff Person's Syndrome" and "Sjogren's Disease"
Yes! Just be kind and if you can't mind your own business.
I have a rare form of Epilepsy. It is easily controlled today, but such was not always the case. My first high school sweetheart ignored me when I was first stricken by a grand mal seizure at 17. I was pretty depressed sitting in a hospital not knowing what was wrong with me and not a visit or a phone call. The first attacks were accompanied by delusions and very clear "visions". I could walk three or four miles and wake up not knowing how I got to where I ended up. Apparently, I could do this without exhibiting any behavior suggestive that anything was amiss. Kind of like being on autopilot. I'd experience a seizure and awaken hours later.
I found my affliction a most interesting study. I discovered all the triggers that set it off and, so long as a precipitous drop in blood sodium was not involved, I could feel an attack coming on and abort it nine out of ten times chugging a mini bottle of vodka or gin which suppressed my nervous system. Talk about amazing my doctors. Of course, this meant no drinking at any other time. Drinking regularly lowers the threshold for seizures.
I've found that most people do not shun me. In fact, only my first sweetheart did. They are most interested in the causes of my illness and in my attitude towards dealing with it...as though I was the doctor rather than the patient. I earn considerable respect. I am fortunate that endorphins and brain chemistry associated with sex can render medications unnecessary indefinitely. After coming off one medication before changing to another, I can go without any medication at all for an extended period. I explored the South American jungle medication free. Other people's reactions are often reflected in the mirror of my attitude., hence other people's reactions are not beyond my control.
How surprising is this! :)
And what's this?
The doctors told me it wouldn't work, but it does. According to med texts, drinking increases one's chances of experiencing a seizure. But if you don't drink at all, the sudden impact of gin or Vodka momentarily excites the system and then depresses it. It proved very surprising to them, but seemed very reasonable to me. Perhaps that's why science is my specialty.
Anti-convulsants will eventually destroy your liver. You must change medications periodically. In order to do this, you must ween yourself off the old drug slowly ( using mini bottles of gin and vodka in my case ). What will happen to me then is absolutely nothing. I won't experience a seizure for up to a year.
I explored the SA jungle without a problem. A new drug was introduced sometime ago and sill works quite well. I only ran into trouble working out and sweating heavily so I could excavate massive blocks of fossils ( 37-million year old whales mainly ). In doing so, I depleted a great deal of sodium from my blood stream. This condition will induce seizures in anyone, even someone that isn't an epileptic. That proved the trigger I'd not discovered previously. Doctors tried to treat the condition with salt. Actually, normal medication and restriction of water intake will do the trick.
Wow! This is very fascinating to me! Thanks for sharing! :)
Thank you,
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